Tuesday, June 2, 2009
Unfortunately there are other families who are also battling NCM. Here is one who really needs prayers right now: www.caringbridge.org/visit/rileymitchell. Riley is an 8 year old who is currently fighting progressing NCM. I have recently been in contact with 2 other families who have recently lost children to NCM, the families of Cooper and Gabriella. It is heartbreaking that our children are suffering from and dying of NCM and the families are being told there is nothing anyone can do. Why not? I am dedicated to finding a cure for this condition and bringing all of the families touched by NCM who wish to participate together to share information in the hopes of finding a cure. If you are reading this and you are interested in being a part of this effort leave a comment and let me know how to contact you.
My mom wrote this article for US Catholic. It's about the day we found out Austin had hydrocephalus and decided to baptize him right there in the hospital room, and the tough weeks that followed. Hope you enjoy it. (click on the title of this post or http://www.uscatholic.org/life/2009/04/what-do-you-ask-child)