This is the story of a boy named Austin who has a condition called neurocutaneous melanocytosis (NCM). He has a shunt in his brain due to hydrocephalus. He is a survivor and a fighter. This is also the story of his family and what it's like to live with a life threatening condition.We hope this blog will help people understand this condition. We also hope to use it to reach out to parents of other children who have NCM. You are not alone!