8 years ago
This is the story of a boy named Austin who has a condition called neurocutaneous melanocytosis (NCM). He has a shunt in his brain due to hydrocephalus. He is a survivor and a fighter. This is also the story of his family and what it's like to live with a life threatening condition.We hope this blog will help people understand this condition. We also hope to use it to reach out to parents of other children who have NCM. You are not alone!
Wednesday, September 24, 2008
We raised $2177 for Nevus Outreach!!
Thank you, thank you, THANK YOU to all of you for your generosity! We truly believe that every dollar we raise brings us closer to a cure for neurocutaneous melanocytosis. There are scientists working on it right now with mice who have NCM (I know it sounds bizarre but it is really happening!) and human testing is scheduled to begin in 2009. We are ever hopeful!
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