8 years ago
This is the story of a boy named Austin who has a condition called neurocutaneous melanocytosis (NCM). He has a shunt in his brain due to hydrocephalus. He is a survivor and a fighter. This is also the story of his family and what it's like to live with a life threatening condition.We hope this blog will help people understand this condition. We also hope to use it to reach out to parents of other children who have NCM. You are not alone!
Saturday, June 16, 2012
Summer
Austin is doing fantastic right now. I should have come on the blog to report that a few months ago he took his very last dose of his anti-seizure medication! It was such a great milestone for him. Now he doesn't take any medicine regularly and that is a huge relief. He finished another year of preschool. He wants to be a rock star when he grows up, as well as a chef, a dad, and a pilot. We decided to wait a year to send him to kindergarten as his birthday is August 24 and he's having a little trouble mastering some fine motor skills like writing. We hope to get some good practice in this summer and he will go to 5 day preschool in the fall. He is loving life and we are loving every minute of watching him grow.
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